24 Jun 2024

June is the month dedicated to raising awareness about the rare disease, Myasthenia Gravis.

Speaking at the Myasthenia Gravis awareness event in Francistown on June 21, Neurologist Dr Alexis Soto from Nyangabgwe Refferral  Hospital explained that the disease impactsed the communication between nerves and muscles, resulting in muscle weakness that tends to worsen throughout the day and with physical activity.

Dr Soto stated that Myasthenia Gravis primarily affects voluntary muscles, leading to a loss of control, weakness, and fatigue as a result of the breakdown in communication between nerves and muscles.

He highlighted that common early signs of the disease included drooping eyelids and double vision, with individuals often perceiving one object appearing twice. 

Other symptoms may include difficulty in standing, lifting objects, speaking, and swallowing. 

Changes in voice, such as a softer or nasal tone, can indicate which muscles are affected.

Dr Soto mentioned that although Myasthenia Gravis can affect individuals of any age, it is more prevalent in women under 40 and men over 60. 

He explained that muscle weakness exacerbated when the affected muscles are active but typically improves with rest. While there is no cure for Myasthenia Gravis, treatments are available to manage and alleviate symptoms.

Sharing her experience, Ms Sethunya Maikano described how the disease slows down the body’s responses to actions, significantly altering an individual’s lifestyle, especially for those accustomed to independence and activity. 

She emphasised the necessity of adapting lifestyle habits, such as maintaining a healthy diet and eating smaller meals.

Ms Maikano encouraged individuals diagnosed with Myasthenia Gravis to adhere to their treatment regimen and embrace the changes they need to make. 

She advocated against discrimination towards people living with this condition. Ends